As we sat watching TV this morning, Liam started naming the animals on his Saturday morning cartoon show. Brian and I began discussing how well he truly does see, and the conversation shifted to the people with albinism that we met at the NOAH conference last year and those on Facebook since then.
One thing Brian had never admitted to me until now was this:
"When I met the two lawyers who were in their early twenties, the teacher, the director with normal successful careers....that's when I finally knew: he is going to do just fine. That was when I could finally...relax a little."
He explained that for most dads it's more about the future, how it will affect their dreams, goals, careers, and success in "our world". Our world doesn't always come "disabled friendly" or "blind friendly". It's harsh, but it's true. Meeting these individuals showed Brian that his son could do almost anything he wanted, his vision not holding him back from a successful career. Dads are natural providers, and they want their sons to be independent providers as well one day. Meetings so many business professionals helped him to relax and realize that people with albinism are just like the rest of us- they just may have to work a little harder at it.
The conversation got me thinking- newly diagnosed families need to hear these success stories.
Dads NEED to hear these success stories.
Now, we know that success is not measured by your job. Many disabilities keep people from working yet they have full and happy, successful lives. But as the parent of a special needs child, knowing that your visually impaired kid has a shot at holding a regular job one day helps with the coping when it comes to the parenting part.
So we wanted to do a few interview posts of some of these business professionals during the next several weeks. We hope to show the new families of young children with albinism that when it comes to their child's education and adult career life, they can (like Brian) just "relax a little".
Like always, if you have any particular questions you want answered email them to me and we will see what we can do. I have a few individuals lined up for the next few weeks, but volunteers are welcome! We will call it the" Beyond The Label | In The Workplace" Series, and I cannot wait to begin!