Friday, June 22, 2012

Albinism in the News

There’s a new article out on Yahoo News this morning that I wanted to share….It’s very disturbing to me since we have talked about trying out public schools with Liam when he gets older and I would love some other parental feedback on it.

The family is seeking action against the school and rightly so I feel, as the children were badly sun burned during a school 5 hour outing during which they were REFUSED sunscreen and being allowed to return indoors.

As you read, keep in mind that one of the mother’s children has a form of Albinism. The family also had a form on file with the school alerting them to the child’s condition and how to care for her and her “sun allergy”.

Let me know your thoughts. You can also link through the article to the mother’s blog where she answers some questions like “why did you not give them sunscreen prior to leaving for school,” and “why did the girls not stand up for themselves knowing they were starting to burn.”

Here is the link:


  1. I'm new to your blog, but I too have a son with ocular albinism. Hagen is almost 17 months and doing great but it is always good to get ideas from others and knOw I'm not alone. Check us out

    1. Very good to meet you Mandi! Thanks for stopping by and what a beautiful family you have!(I browsed your blog a little!) Hagan looks so sweet! I see he has Nystagmus like Liam as well?